Practicing Community-Centered Care
In terms of the biggest issues she’s seeing in her patient population, Dr. O’Bryan is feeling optimistic about kids’ mental health. “That’s an area where we might be actually doing okay in my immediate community,” she shares, still a bit hesitant. “The problem is less now about availability—there are more and more counseling and therapy practices available. The main issue for families is cost. There aren’t as many Medicaid providers for counseling. But there are more options, which is great.”
What’s of more immediate concern to Dr. O’Bryan is “the lack of rehab services in school.”
She shares that almost none of her patients with autism are getting ADA accommodations at school. “My most severe cases might get some support, but sometimes it’s just way off,” she explains. “I have one patient with severe autism who gets 5 minutes of occupational therapy a month, according to his IEP,” she exclaims, clearly frustrated. Dr. O’Bryan makes sure to keep her patients’ IEPs in their medical files, so that there’s continuity of care between schools and her practice.
“The problem is that school systems are choosing to respond to this by telling parents that their children just don’t need these services,” she says. “I guess they don’t want to be caught saying ‘you need this but we can’t provide it.’” Dr. O’Bryan is seeing families caught in the bureaucracy of navigating public schools and testing for learning differences.
“So what do I do about it? There’s only so much one person can do,” she says, “But I try to intervene where I can. I put my families in touch with the Arc, an advocacy resource center.” The Arc is region-specific, with chapters around the U.S., and helps advocate for people with disabilities.
“Sometimes parents feel like they’re being too pushy with the schools,” Dr. O’Bryan continues, “And I try to take some of that concern off of them. If your kid couldn’t see, the school wouldn’t prevent them from putting their glasses on, right?” She continues, “Your kid needs these accommodations and support to get an equitable education. This is their right as a citizen of this country.”
For Dr. O’Bryan, it’s about helping families know where they stand. “Maybe your kid won’t get occupational therapy or an IEP, but at least you know they deserve it, and can be on the lookout for ways to help them,” she says. “Making sure families understand the basic rightness of this need is the first step.”